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Meet the Team

As the charity is in its infancy, it was important to have trustees who could bring different experiences to the table and help support the charity. Read below our trustees story on what HOPE London means to them and their motivations for becoming a trustee.

Lesley Haigh - Community Matron - Special Needs

I became a Trustee to enable the start up of this support group. I work with many children and young people with epilepsy as part of my role and see first hand the need for family support. There has not been any equivalent group available to families before in this area.

The regular meetings are an opportunity to meet with some of the families on my caseload in a relaxed environment. I welcome the chance to answer any questions parents may have but also to hear of any difficulties they are experiencing with local services. As I deliver the epilepsy training in Barnet for nurseries, schools and transport and have links with education this often enables me to sign post parents to the best person to help them. It also enables me to change the training to reflect issues. Meeting and talking to families is always a valuable learning experience for me.

David Newbold - Treasurer

I became a Trustee to bring a depth of financial and governance expertise. To contribute to the organization, start-up and continuing operation of HOPE London for the benefit of the children and their families.

HOPE London is an organisation bringing value to each of the family units with a special emphasis on breaking down isolation by providing a forum for interaction at all levels amongst individuals with like challenges and experiences.

Neil Williamson - Chairman

My name is Neil and I am a pediatric nurse currently working as an epilepsy nurse in South London.  I have predominantly worked in neurology and palliative care as a staff nurse as well as a manager and nurse specialist in multiple charities and the NHS.  As well as working with Hope for London, I also work for a charity that provides residential camps for children, teenagers and families with serious health challenges.

Having a child with a significant health condition within my family has been the driver to becoming a nurse.  I have always tried to be family centred and to work with children, young adults and their families, in a person centred approach, understanding that they are more than just their condition, however complex their health needs are.

I believe in the power of relationships between people and I am pleased to be part of Hope for Epilepsy: London

 

Julie Murray - Trustee

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I joined HOPE as a volunteer back in 2012 when the charity was still very new.  I worked with our Chairman's wife and we were pregnant with our first babies at the same time.  I was sad to hear the news that their son had been born with Dravet's and when Scott set up HOPE I wanted to get involved and help them.  It has been a wonderful journey and the children that attend our monthly sessions are an inspiration.

I have recently become a trustee and organise events for the families to attend such as trips to London Zoo, Interactive Story Workshops and Christmas parties.

Nadine Gurr - Trustee

I became a Trustee because I wanted to help HOPE London with their work supporting children and their families affected by epilepsy. My small part in the big picture. 

HOPE London means families can meet in a supportive environment. They can learn more about epilepsy, and gain access to information and advice on coping and dealing with it. HOPE London means empowering families with the knowledge that enables them to have as much control as possible over an unpredictable and frightening condition.